Why is FOP research important?

I know what you all are thinking.  FOP only affects 1 in 2 million people.  So, why don't we focus on funding more common diseases like Hemophilia or Down Syndrome?  Well, there is nothing wrong with that.  In fact, I encourage it. 

 

However, unlike many disorders, where research is confined to that specific disorder, increased FOP research helps benefit research in other bone-related issues, like osteoporosis.

 

 

In osteoporosis, bone mass decreases, which can lead to an increased risk of fracture.  The more scientists study into the ACVR1 gene and its control of the bone morphogenetic proteins (BMPs), the more they understand how ossification works.  This critical information can help scientists figure out how to facilitate new bone growth for those in need of it, such as those with osteoporosis.

 

So, what can YOU do to help?

 

I know this may seem to simple, but all you need to do to help FOP patients is spread the word.  Not just about FOP, but about all genetic disorders.  Raising general awareness of these diseases is of the utmost importance - it is more important than fundraisers and donations because in the end

AWARENESS=MORE FUNDING...

 

And that is exactly what I hoped to accomplish with this blog.  I hope you enjoyed learning about FOP and I hope I was successful in teaching  you about the terrifying disease.

 

If you would like to help out even more, visit IFOPA to become a member, donate, and become part of the community.